Menu
Home Page

Run or Dye at Aintree 2015-Photos added

Our staff team of 11 completed the Run or Dye 5km event at Aintree on June 6th 2015. This fun event involves the competitors being covered in dye every kilometre. Photos of our team have now been added to this page.

 

Thanks to the generosity of so many people, we think our total amount raised will exceed £1000 in the coming days. This is a fabulous amount and we are so grateful for the help and support we have received.

 

We decided to use the event to raise money for Debra, the charity that helps raise money for children who suffer from the genetic skin condition called Epidermolysis Bullosa. Children with EB are sometimes called Butterfly Children as their skin is so delicate.

 

Epidermolysis Bullosa (EB) is a group of genetic skin conditions which cause the skin to blister and tear at the slightest touch. this makes everyday life painful and very difficult. Most people don't know anything about this terrible disease and most families have no warning that their new baby will have EB.  I would ask that you all spend 5 minutes of your busy lives watching the video on this link.

https://www.youtube.com/watch?v=cFPAsTtdDfI#

 

To find out more about this terrible condition, visit www.debra.org.uk

 

I have sadly had personal experience with this horrendous condition. Connor Marsden was a pupil at my previous school in St Helens. Connor had EB and he sadly passed away in July 2014 just as he was becoming an adult. His family lived with the impact of the disorder every day and Connor was always in pain. He had to have blisters burst, wounds bathed and dressings applied before he came to school each day. He couldn't eat normal food and even having a bath was excruciating.  I asked the staff team if we could support the charity that helped his family throughout his short life. 

 

If you would still like to donate a small amount you can:-

* Bring a small donation into school

* Use our Just Giving page at  www.justgiving.com/FRJS/

 

Thank you

Top